Mission

Our goal is to unite our community, educate, support research, and awareness for complex regional pain syndrome.


Our Story

Our Founder and Executive Director was diagnosed with CRPS in 2011. While searching for valid information about her diagnosis, she realized there wasn’t a message board forum for The CRPS Community. In 2014, she decided to create CRPS Forum and launched it that fall. In addition to creating the first message board Forum for CRPS, she also began to work with Los Angeles Mayor Eric Garcetti and The County of Los Angeles Board of Supervisors to create awareness, support and proclamations for our annual awareness day.
 
Los Angeles and Los Angeles County have proclaimed and supported CRPS Awareness Day for the last five consecutive years and Anaheim has joined the tradition the last two consecutive years. On July 21st, 2017, she organized the first Major League Baseball game and CRPS Awareness game, which was held at Dodger Stadium. In order to continue her mission, CRPS Forum became a 501(c)(3) in the beginning of 2018.
 
On August 26th, 2018, we organized our Second Annual CRPS Awareness Day and Fundraiser at Dodger Stadium along with the first CRPS Convention at Disney’s Paradise Pier Hotel in Anaheim on November 3rd and 4th, 2018. Our Third Annual CRPS Awareness Game and Fundraiser at Dodger Stadium on August 3rd, 2019, and Second Annual CRPS Convention on November 2nd and 3rd, 2019 at Disney’s Grand Californian Hotel and Spa in Anaheim, CA.
 
This year, our Fourth Annual CRPS Awareness Game and Fundraiser at Dodger Stadium on Friday, August 7th, 2020 has been cancelled due to the pandemic and our Third Annual CRPS Convention on November 7th-8th, 2020 is virtual. We are both excited and thankful to watch CRPS Forum continue to grow in support of our mission to educate, support research and awareness, and thank you for your support.

CRPS Forum Team

Board of Directors

Roxanne Piszczek - Board Chair

Our founder has been living with CRPS since 2011. Prior to contracting complex regional pain syndrome, Roxanne, held a successful career in the music industry. At 18, she was signed to Polygram Records, had two successful singles and toured worldwide. She later became a disc jockey and collaborated with brands which included Monster Energy, Red Bull, Jägermeister, and Maxim, as well as with pop, dance, rock, and hip hop artists, and NBA, NFL, and MLB athletes.

She graduated college with a focus on psychology. In college, she volunteered for various nonprofits including The Make-A-Wish Foundation. As a volunteer, she became a Wish Granter, acquired physical donations, greeted families at the airport, attended sporting events with Wish Kids, and contributed to their annual ice cream social, and black tie gala.

Along with CRPS Forum’s mission, Roxanne’s goal is to unite her community and instill hope. She enjoys learning about fellow warriors forming new friendships and seeing frowns transform to smiles at CRPS Forum events. She understands that while living with complex regional pain syndrome is a difficult journey, when a community unites, they can form a great power and create great accomplishments together

Rissa Lynch - Board Secretary

Rissa Lynch has been living in Orlando, FL for the past 11 years. She’s interested in how she can help people who are living with complex regional pain syndrome and helping them gain and maintain a positive and hopeful outlook. She looks forward to being a part of the CPRS Community and doing her part with awareness, education, supporting research, motivating others to live their best lives, and staying positive.

Nick Memeti - Board Treasurer

More information coming soon.

Scientific Advisory Board

Dr. Joshua Prager
Dr. Prager has delivered the Decade of Pain Lecture at the American Academy of Pain Medicine annual meeting. He received an award for leadership and contributions by the California Society of Anesthesiologists and is an editor of its continuing medical education program on pain and end of life care. He has received both the lifetime achievement award and the distinguished service award form the North American Neuromodulation Society. Dr. Prager has twice received teaching awards in the Department of Anesthesiology at UCLA for teaching in pain medicine. Dr. Prager believes that voluntary work is an important component of his career. He has volunteered to provide internal medicine care at the Haight-Ashbury Free Clinic as well as providing anesthesia for Third World children undergoing correction of congenital anomalies through the Organization Interplast. He has served as a consultant to Medicare on both a local and national level. He has lectured extensively in Europe, Asia, and Australia.
Dr. Shahin Sadik

Dr. Shahin Sadik is one of the founding physicians of Universal Pain Management. Dr. Sadik graduated with a medical degree at Eastern Virginia Medical School of Medical College of Hampton Roads. He then completed his residency in anesthesiology and fellowship training in pain management at the University of Pennsylvania. Currently, Dr. Sadik works as a pain management physician and Medical Director at Universal Pain Management in California.

Board-certified by the American Board of Anesthesiology with special qualification in pain management and also by the American Board of Pain Medicine, Dr. Sadik has vast experience managing chronic pain. In addition to his duties at Universal Pain Management, Dr. Sadik holds a faculty position at the University of Southern California, Keck School of Medicine as Assistant Professor of Anesthesiology.

Dr. Pradeep Chopra
Dr. Chopra is a Pain Medicine specialist with a special interest in complex chronic pain conditions. He had his residency in Anesthesia and Critical Care, Fellowship in Pain Medicine – all from Harvard Medical School. Dr. Chopra is currently an Assistant Professor (Clinical) at Brown Medical School and work full time as a Pain Medicine specialist. He has a special interest in chronic complex pain conditions and their associated co-existing conditions in adults and children.
Dr. Jennifer Goldin

Dr. Jennifer Goldin graduated medical school at Wright State University School of Medicine and is board certified in family medicine. She created our Guide for the Newly Diagnosed with Complex Regional Pain Syndrome and CRPS: Guide for Teachers and Other School Personnel booklets. You may view her article featured on The Mighty here and the booklets she created under our resources page.

Dr. Philip Getson
Philip Getson, D.O. is a Family Physician in practice since 1976 in New Jersey. He is an internationally recognized expert in the diagnosis and treatment of Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome. He is an Assistant Professor of Medicine in Neurology at Drexel University College of Medicine in Philadelphia, and a member of the medical staff at Virtua, Thomas Jefferson University and Cooper Hospitals. His work there, in collaboration with Dr Robert Schwartzman, included formulating the initial protocols for in- and out- patient Ketamine infusion therapy and was one of the first physicians in the country to utilize this treatment for CRPS. He is a Board Certified Thermologist and has reviewed more than 30,000 Thermographic Studies of the breast, thyroid, dental and neuromuscular system since 1982. He has been certified by four Thermographic Boards has lectured nationally and internationally regarding Thermographic testing, and has authored several papers on the subject. He has recently served as Vice President of the American Academy of Thermology. Dr. Getson was chairman of the committee responsible for formulating the first ever protocols for breast thermography that have since been accepted by the National and International Thermographic Communities.

Junior Board of Directors

Casey Sullivan

Born in Hillsboro, Oregon but currently living in Queen Creek, Arizona, Casey Sullivan has struggled with the pain of CRPS for almost 6 years now. She was diagnosed with CRPS back in 2014 and has since graduated high school and finds herself as a current freshman in college. She was inspired by her caring and knowledgeable nurses that she encountered throughout her journey and is now pursuing a career in Nursing through her study at Arizona State University. She has already obtained her LNA license and her Phlebotomy Technician Certification and has an end goal of becoming a Nurse Practitioner to help other children in a similar situation to hers. She hopes that she can enact change and inspire others to be brave in the face of fear and adversity through her work with CRPS Forum. She looks forward to being a part of this organization and helping others in a positive way.

Jack Puttock

Jack is a 17 year-old Entrepreneur based in the United Kingdom. He has had CRPS since February 2019, after an injury at school which left him with debilitating pain in his right arm. He is passionate about raising awareness, and giving back to charities that helped him when he was going through the toughest point in his life. He enjoys running his business alongside studying A-Levels and in his free time enjoys tinkering with IT.

Weronika Rozycka

Weronika is a sixteen-year-old high school student from Poland. Her CRPS developed in her right foot after a surgery in December 2018 and since then it has spread to her right calf and left shoulder. When she was diagnosed she knew straight away that she wants to do her best to spread awareness about this disease and help others who find themselves lost, alone or uncertain in the face of this diagnosis or want to communicate with other CRPS warriors and she  believes that can be done through becoming a part of the CRPS Forum community. 

Her dream is to change this situation by going to university to study medicine and pursuing a career as a doctor specializing in rare neurological diseases, which she is looking forward to doing straight after she graduates from the International Baccalaureate Diploma Programme at her high school.