Mission

Our goal is to unite, educate, support research, and raise awareness for Complex Regional Pain Syndrome.

Our Story

CRPS Forum founder, Roxanne, was diagnosed with CRPS in 2011. While searching for valid information about her diagnosis, she realized there wasn’t a message board forum for The CRPS Community. In 2014, she decided to create CRPS Forum and launched it that fall. In addition to creating the first message board Forum for CRPS, she also began to work with Los Angeles Mayor Eric Garcetti and The County of Los Angeles Board of Supervisors to create awareness and proclamations for CRPS Awareness Day.

Los Angeles and Los Angeles County have proclaimed and supported CRPS Awareness Day for the last four years. On July 21st, 2017, she organized the first Major League Baseball game and CRPS Awareness game, which was held at Dodger Stadium. In order to continue her mission, CRPS Forum became a 501(c)(3) in the beginning of 2018.

On August 26th, 2018, we organized our Second Annual CRPS Awareness Day and Fundraiser at Dodger Stadium along with the first CRPS Convention and Talks at Disney’s Paradise Pier Hotel in Anaheim on November 3rd and 4th, 2018.

We’re currently prepping for our third annual awareness game at Dodger Stadium on August 3, 2019, and Second Annual CRPS Convention on November 2nd and 3rd, 2019 at Disney’s Paradise Pier Hotel in Anaheim, CA. We are excited to watch CRPS Forum grow and thankful for your support.

CRPS Forum Team

Board of Directors

Roxanne Piszczek - Board Chair

Our founder has been living with CRPS since 2011. Prior to contracting complex regional pain syndrome, Roxanne, held successful careers in the music industry. At 18, she was signed to SOS/Polygram Records, had two successful singles and toured worldwide. She later became a disc jockey and collaborated with brands which included Monster Energy, Red Bull, Jägermeister, and Maxim, as well as with pop, dance, rock, and hip hop artists, and NBA, NFL, and MLB athletes.

She graduated college with a focus on psychology. In college, she volunteered for various nonprofits including The Make-A-Wish Foundation. As a volunteer, she became a Wish Granter, acquired physical donations, greeted families at the airport, attended sporting events with Wish Kids, and contributed to their annual ice cream social, and black tie gala.

Along with CRPS Forum’s mission, Roxanne’s goal is to unite her community and instill hope. She enjoys learning about fellow warriors forming new friendships and seeing frowns transform to smiles at CRPS Forum events. She understands that while living with complex regional pain syndrome is a difficult journey, when a community unites, they can form a great power and create great accomplishments together.

Rissa Lynch - Board Secretary

Rissa Lynch has been living in Orlando, FL for the past 11 years. She’s interested in how she can help people who are living with complex regional pain syndrome and helping them gain and maintain a positive and hopeful outlook. She looks forward to being a part of the CPRS Community and doing her part with awareness, education, supporting research, motivating others to live their best lives, and staying positive.

Tony Cordasco - Board Treasurer
A 38-year resident of Southern Nevada, Cordasco is known as a marketer, broadcaster, publicist, and active community member. After opening the Las Vegas market for Red Bull Energy Drink in April, 2000, and working for the brand in a variety of capacities for 15 years, Cordasco has now embarked on a successful consulting career. His Dasco Events clientele has included, Intel, Toyota, Universal Music, Topgolf, Snyder’s-Lance, Kettle Brand Chips, Frito-Lay, Lake Las Vegas, Sparkling Ice, ABK Beer, Royal Links Golf Club, Western Spirits, and MIXWELL Premium Mixers. As a versatile announcer he has been a part of the Las Vegas broadcast landscape for more than 30 years. Active in the Las Vegas community, he currently serves on the KUNV advisory board, UNLV Alumni Association Marketing Board, “50 Years of UNLV Football” board, and is a member of Nevada Restaurant Association. He also hosts an annual Sweater Drive for the homeless community in Las Vegas and writes for Las Vegas Magazine. Cordasco’s goal is to help increase awareness for CRPS and raise money for research.

Scientific Advisory Board

Dr. Joshua Prager
Dr. Prager has delivered the Decade of Pain Lecture at the American Academy of Pain Medicine annual meeting. He received an award for leadership and contributions by the California Society of Anesthesiologists and is an editor of its continuing medical education program on pain and end of life care. He has received both the lifetime achievement award and the distinguished service award form the North American Neuromodulation Society. Dr. Prager has twice received teaching awards in the Department of Anesthesiology at UCLA for teaching in pain medicine. Dr. Prager believes that voluntary work is an important component of his career. He has volunteered to provide internal medicine care at the Haight-Ashbury Free Clinic as well as providing anesthesia for Third World children undergoing correction of congenital anomalies through the Organization Interplast. He has served as a consultant to Medicare on both a local and national level. He has lectured extensively in Europe, Asia, and Australia.
Dr. Philip Getson
Philip Getson, D.O. is a Family Physician in practice since 1976 in New Jersey. He is an internationally recognized expert in the diagnosis and treatment of Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome. He is an Assistant Professor of Medicine in Neurology at Drexel University College of Medicine in Philadelphia, and a member of the medical staff at Virtua, Thomas Jefferson University and Cooper Hospitals. His work there, in collaboration with Dr Robert Schwartzman, included formulating the initial protocols for in- and out- patient Ketamine infusion therapy and was one of the first physicians in the country to utilize this treatment for CRPS. He is a Board Certified Thermologist and has reviewed more than 30,000 Thermographic Studies of the breast, thyroid, dental and neuromuscular system since 1982. He has been certified by four Thermographic Boards has lectured nationally and internationally regarding Thermographic testing, and has authored several papers on the subject. He has recently served as Vice President of the American Academy of Thermology. Dr. Getson was chairman of the committee responsible for formulating the first ever protocols for breast thermography that have since been accepted by the National and International Thermographic Communities.
Dr. Pradeep Chopra
Dr. Chopra is a Pain Medicine specialist with a special interest in complex chronic pain conditions. He had his residency in Anesthesia and Critical Care, Fellowship in Pain Medicine – all from Harvard Medical School. Dr. Chopra is currently an Assistant Professor (Clinical) at Brown Medical School and work full time as a Pain Medicine specialist. He has a special interest in chronic complex pain conditions and their associated co-existing conditions in adults and children.

Junior Board of Directors

Danna Griffin
Hello! My name is Danna Griffin and I am a full time nursing student as well as a chronic pain patient. I have been fighting CRPS for 8 years now and enjoy getting to meet others through my journey as well as share my story. What ultimately drives me to help in my CRPS community is my passion to help others change their perspective of their pain and to see not just the negatives that have come from this disease but also the positives. Changing my perspective on my pain has given me new purpose and pushed me to want to be more involved with other teenagers fighting CRPS and give them a fresh boost of confidence in their fight.
Cadee Kulm
Hi! My name is Cadee and I am 16 years old. I have been living with CRPS for a year now. I really want to get more involved in the CRPS Community because I want to help kids and adults who live with CRPS know that they are not alone.
Elena Nygard
My name is Elena Camille Nygard, I am 13 years old and I am fundamentally a complex person, but my purpose in life is clear. To help people and learn along the way. I have always had a passion/interest in helping people even when I didn’t know what it was(when I was a toddler). Being introduced into the CRPS community has kickstarted that, seeing fellow members thriving despite every reason to stop. I have been inspired to help in any way I can. If that means raising money, spreading awareness, or closely following developing research to help give hope, I’ll do it. I don’t think I’ll truly ever know what actually drives me to support our community but I do know that it will always be a fact of my life.
Meagan Zaccagnini
My name is Meagan Zaccagnini. I’m 14 years old and I’m so excited to be one of the Junior Board of Directors. I was diagnosed with both type 1 and type 2 of CRPS when I was 11 and now I’ve been in remission for one year and I want to be able to share my story because I’ve been called a medical mystery with my diagnosis and want to help CRPS be cured!
Emily Brault
Hi my name is Emily Brault, I am 16 and have been living with CRPS for almost 4 years now. I want to be apart of this journey to inspire others with CRPS. I am an active athlete diving in the fall and polevaulting in the spring and I want to show people that it’s possible to overcome the pain and live your life how YOU want to live it. I don’t allow my disorder to define me and I want to help others step out of their comfort zone and reclaim their life.