Our goal is to unite, educate, support research, and raise awareness for Complex Regional Pain Syndrome.
CRPS Forum founder, Roxanne, was diagnosed with CRPS in 2011. While searching for valid information about her diagnosis, she realized there wasn’t a message board forum for The CRPS Community. In 2014, she decided to create CRPS Forum and launched it that fall. In addition to creating the first message board Forum for CRPS, she also began to work with Los Angeles Mayor Eric Garcetti and The County of Los Angeles Board of Supervisors to create awareness and proclamations for CRPS Awareness Day.
Los Angeles and Los Angeles County have proclaimed and supported CRPS Awareness Day for the last four years. On July 21st, 2017, she organized the first Major League Baseball game and CRPS Awareness game, which was held at Dodger Stadium. In order to continue her mission, CRPS Forum became a 501(c)(3) in the beginning of 2018.
On August 26th, 2018, we organized our Second Annual CRPS Awareness Day and Fundraiser at Dodger Stadium along with the first CRPS Convention and Talks at Disney’s Paradise Pier® Hotel in Anaheim on November 3rd and 4th, 2018.
We’re currently prepping for our third annual awareness game at Dodger Stadium on August 3, 2019, and Second Annual CRPS Convention on November 2nd and 3rd, 2019 at Disney’s Grand Californian Hotel® and Spa in Anaheim, CA. We are excited to watch CRPS Forum grow and thankful for your support.
CRPS Forum Team
Board of Directors
Our founder has been living with CRPS since 2011. Prior to contracting complex regional pain syndrome, Roxanne, held a successful career in the music industry. At 18, she was signed to Polygram Records, had two successful singles and toured worldwide. She later became a disc jockey and collaborated with brands which included Monster Energy, Red Bull, Jägermeister, and Maxim, as well as with pop, dance, rock, and hip hop artists, and NBA, NFL, and MLB athletes.
She graduated college with a focus on psychology. In college, she volunteered for various nonprofits including The Make-A-Wish Foundation. As a volunteer, she became a Wish Granter, acquired physical donations, greeted families at the airport, attended sporting events with Wish Kids, and contributed to their annual ice cream social, and black tie gala.
Along with CRPS Forum’s mission, Roxanne’s goal is to unite her community and instill hope. She enjoys learning about fellow warriors forming new friendships and seeing frowns transform to smiles at CRPS Forum events. She understands that while living with complex regional pain syndrome is a difficult journey, when a community unites, they can form a great power and create great accomplishments together
Rissa Lynch has been living in Orlando, FL for the past 11 years. She’s interested in how she can help people who are living with complex regional pain syndrome and helping them gain and maintain a positive and hopeful outlook. She looks forward to being a part of the CPRS Community and doing her part with awareness, education, supporting research, motivating others to live their best lives, and staying positive.
More information coming soon.
Scientific Advisory Board
Junior Board of Directors
Hello! My name is Danna Griffin and I am a full time nursing student as well as a chronic pain patient. I have been fighting CRPS for 8 years now and enjoy getting to meet others through my journey as well as share my story. What ultimately drives me to help in my CRPS community is my passion to help others change their perspective of their pain and to see not just the negatives that have come from this disease but also the positives. Changing my perspective on my pain has given me new purpose and pushed me to want to be more involved with other teenagers fighting CRPS and give them a fresh boost of confidence in their fight.