Last Online: May 28, 2017 15:22:55 GMT -8
tresa55: Hi ..I'm Theresa..I have had rsd/crps for 9 years now...both hands and arms to shoulders. Lovely huh? LOL..Hope all are having a low pain...I am not.. take care now...
May 25, 2016 17:08:21 GMT -8
rivergirl28: Hi. I'm Lorie. I've had CRPS for 5 & 1/2 years. Upper right extremity, finger tips to shoulder. Now on the move, spreading into my collar bone and shoulder blade. It's awful. Work Comp insurance controls EVERYTHING, so I get NOTHING. Very frustrating.
Jun 1, 2016 16:19:59 GMT -8
dystonicgal: Hi I'm Jennifer , have had RSD for almost 30 years but went untreated till 2012! I'm now bedridden and know if I was treated back in the 80s then things would be better. My RSD includes organs, there's very little if me that's not affected
Jun 16, 2016 7:44:06 GMT -8
almaluna: My name is Alma I've had CRPS for past 5 years in my right dominant hand/arm/shoulder/ neck !!! & Pain is soooo bad sometimes it goes all the way to my R side of Jaw, ear, face & causes me to have severe head aches at times. But I have GOD! helping me
Jul 28, 2016 0:20:11 GMT -8
janayrose: Hi I am Janay I have cold crps in ankle and has moved up past knee. Has only been 6 months. Anyone used the drg (I think that's what it's called) stimulator. I'm worried about getting one. Don't like the idea of plastic in my body.
Jan 26, 2017 22:10:12 GMT -8
shiri: Hi I'm Shiri from Washington state. I've had crps since a wrist fracture in 2014. The pain is concentrated in my hand but affects my whole arm.
Feb 26, 2017 7:38:22 GMT -8
caityincali: Hello, my name is Caity. I have had CRPS since 2009. I use a multitude of alternative treatments to gain pretty great pain relief. Everyday is a struggle mentally, physically and financially but we make it work one way or another. I have it in both legs.
Mar 2, 2017 10:02:10 GMT -8
jimmyglaughlin: How is everyone doing today......sorry, I guess we all have CRPS, how good can it be?? A feeble attempt at CRPS humor. I finished another couple of posts on my website lifewithcrps.com. Please check them out, let me know if I missed anything
Mar 30, 2017 16:47:41 GMT -8
lavalikemagma: Hello! Newbie to the forum Fellow CRPS (and Fibromyalgia) Warrior. I’m also a film making. Hope I can share my CRPS awareness videos with you all I’m going to browse around the discussions and excited to find this forum!!
Apr 27, 2017 10:49:33 GMT -8
marilynpositive: Hi, My name is Marilyn. I have had CRPS as a result of a car accident in 2008. Broke my left wrist, hand and ironically middle finger too. I have chosen not to do the traditional "treatments' "meds". I take a combination of vitamins and use Voltaren gel
May 4, 2017 22:37:23 GMT -8
princessfrost18: Howdy, I am a newbie here and like all of you I have CRPS. I got it when I broke my left arm and a few years later it went Into my right arm. It's hard when your just a teen.
May 24, 2017 7:35:15 GMT -8
crpsdoc: I am new to the Board and am an analog guy in a digital world. Lonnie Zeltzer MD (UCLA) and myself are pain docs and thought it may seem selfserving, we just published a book for parents and young adults with chronic pain. It has been well reviewed.
Jun 27, 2017 9:16:31 GMT -8
crpsdoc: It is PAIN IN CHILDREBN and YOUNG ADULTS. a Freebie for all KINDLE readers I am happy to answer questions.
Jun 27, 2017 9:17:34 GMT -8
sueyschu: Hi. Our son has CRPS from a minor car accident. My husband and I were glad to meet some of you at the Dodger Game last night.
Jul 22, 2017 19:49:10 GMT -8
Roxanne: sueyschu Hi! Thank you for joining us & showing your support! It was a pleasure meeting you, I hope to see you again, next year, & wish your son extra spoons. 🎗
Jul 22, 2017 23:44:19 GMT -8
taymaye: Hi I am also a newbie. I'm Taylor. I have had rsd/crps in my left arm, shoulder and hand since 2009. It also moves to my right side as well. I found physical therapy, nerve therapy on a regular basis helps some what. I am lucky enough to have a mild case.
Jul 23, 2017 6:05:19 GMT -8
mike472crps: Hi my name is Mike and I just now joined the forum. I have had CRPS for 14yrs and it has pretty much spread all over, mild in some areas and very not so mild in other areas, lol. But it's nice to finally get up the courage to join a group like this.
Aug 7, 2017 11:14:33 GMT -8
monika: Hello ! I wanted to know whether any of your or someone you may know has ever tried using the DRG or BurstDR stimulator to help with alleviating the pain related to CRPS?
Aug 10, 2017 11:12:40 GMT -8