SA Smith: Hi. I'm Sherri I have been living with CRPS for 13 years. Hope all is going good in your lives this week
May 25, 2016 9:01:52 GMT -8
tresa55: Hi ..I'm Theresa..I have had rsd/crps for 9 years now...both hands and arms to shoulders. Lovely huh? LOL..Hope all are having a low pain...I am not.. take care now...
May 25, 2016 17:08:21 GMT -8
rivergirl28: Hi. I'm Lorie. I've had CRPS for 5 & 1/2 years. Upper right extremity, finger tips to shoulder. Now on the move, spreading into my collar bone and shoulder blade. It's awful. Work Comp insurance controls EVERYTHING, so I get NOTHING. Very frustrating.
Jun 1, 2016 16:19:59 GMT -8
dystonicgal: Hi I'm Jennifer , have had RSD for almost 30 years but went untreated till 2012! I'm now bedridden and know if I was treated back in the 80s then things would be better. My RSD includes organs, there's very little if me that's not affected
Jun 16, 2016 7:44:06 GMT -8
almaluna: My name is Alma I've had CRPS for past 5 years in my right dominant hand/arm/shoulder/ neck !!! & Pain is soooo bad sometimes it goes all the way to my R side of Jaw, ear, face & causes me to have severe head aches at times. But I have GOD! helping me
Jul 28, 2016 0:20:11 GMT -8
janayrose: Hi I am Janay I have cold crps in ankle and has moved up past knee. Has only been 6 months. Anyone used the drg (I think that's what it's called) stimulator. I'm worried about getting one. Don't like the idea of plastic in my body.
Jan 26, 2017 22:10:12 GMT -8
shiri: Hi I'm Shiri from Washington state. I've had crps since a wrist fracture in 2014. The pain is concentrated in my hand but affects my whole arm.
Feb 26, 2017 7:38:22 GMT -8
caityincali: Hello, my name is Caity. I have had CRPS since 2009. I use a multitude of alternative treatments to gain pretty great pain relief. Everyday is a struggle mentally, physically and financially but we make it work one way or another. I have it in both legs.
Mar 2, 2017 10:02:10 GMT -8
jimmyglaughlin: How is everyone doing today......sorry, I guess we all have CRPS, how good can it be?? A feeble attempt at CRPS humor. I finished another couple of posts on my website lifewithcrps.com. Please check them out, let me know if I missed anything
Mar 30, 2017 16:47:41 GMT -8
lavalikemagma: Hello! Newbie to the forum Fellow CRPS (and Fibromyalgia) Warrior. I’m also a film making. Hope I can share my CRPS awareness videos with you all I’m going to browse around the discussions and excited to find this forum!!
Apr 27, 2017 10:49:33 GMT -8
lavalikemagma: If not OK, to post here, sorry! Just meant to post earlier my short film about CRPS: https://youtu.be/UG_kvNiaTVw
Apr 27, 2017 13:41:32 GMT -8
marilynpositive: Hi, My name is Marilyn. I have had CRPS as a result of a car accident in 2008. Broke my left wrist, hand and ironically middle finger too. I have chosen not to do the traditional "treatments' "meds". I take a combination of vitamins and use Voltaren gel
May 4, 2017 22:37:23 GMT -8
princessfrost18: Howdy, I am a newbie here and like all of you I have CRPS. I got it when I broke my left arm and a few years later it went Into my right arm. It's hard when your just a teen.
May 24, 2017 7:35:15 GMT -8
crpsdoc: I am new to the Board and am an analog guy in a digital world. Lonnie Zeltzer MD (UCLA) and myself are pain docs and thought it may seem selfserving, we just published a book for parents and young adults with chronic pain. It has been well reviewed.
Jun 27, 2017 9:16:31 GMT -8
crpsdoc: It is PAIN IN CHILDREBN and YOUNG ADULTS. a Freebie for all KINDLE readers I am happy to answer questions.
Jun 27, 2017 9:17:34 GMT -8
sueyschu: Hi. Our son has CRPS from a minor car accident. My husband and I were glad to meet some of you at the Dodger Game last night.
Jul 22, 2017 19:49:10 GMT -8
Roxanne: sueyschu Hi! Thank you for joining us & showing your support! It was a pleasure meeting you, I hope to see you again, next year, & wish your son extra spoons. 🎗
Jul 22, 2017 23:44:19 GMT -8
taymaye: Hi I am also a newbie. I'm Taylor. I have had rsd/crps in my left arm, shoulder and hand since 2009. It also moves to my right side as well. I found physical therapy, nerve therapy on a regular basis helps some what. I am lucky enough to have a mild case.
Jul 23, 2017 6:05:19 GMT -8